My research focuses on Williams Syndrome- a developmental condition associated with a propensity to be ‘hyper-social’ and resultant increases in social vulnerability. As the internet becomes increasingly intertwined with real life, it becomes important to understand critical elements of both online interactions and online safety for this group, and to put measures in place to allow for their safe use of the internet.
My PhD focuses on the ways in which young people with Williams Syndrome currently use the internet, how online interactions relate to real world interactions, and how safe online interactions can be supported in vulnerable populations. Through interview, diary and questionnaire methods given to young people and their carers I plan to gather a mixture of qualitative and quantitative data to ensure data richness and to cater to the different abilities of a range of participants with Williams Syndrome. The final products of my work will include family workshops and information materials to increase the safe digital inclusion of young people with Williams Syndrome, which in future may be adapted to other potentially vulnerable groups.
I am collaborating with the Williams Syndrome foundation, who support UK families with the condition and are heavily involved in research and awareness surrounding it. At the heart of my PhD is a participatory approach to ensure that the final project makes both an academic contribution and a real-world impact to support young people with Williams Syndrome and their families online.
